About Us

About Us

The National Task Force for Early Identification of Childhood Neuromuscular Disorders convened in 2009 to address the delay that families frequently experience between symptom onset and diagnosis of neuromuscular disorders. The Task Force aims to increase clinicians’ awareness of peripheral neuromuscular disease as a cause of developmental delay in young children, and to help providers in primary care, rehabilitation medicine, and physical therapy identify the early symptoms of neuromuscular disorders.

The Task Force was funded by a cooperative agreement from the CDC and included representatives from:

  • American Academy of Pediatrics
  • American Academy of Neurology
  • Association of Academic Physiatrists
  • Childhood Neurology Society
  • American Academy of Physician Assistants
  • National Association of Pediatric Nurse Practitioners
  • National Association of Community Health Centers
  • American Physical Therapy Association
  • American Academy of Physical Medicine and Rehabilitation
  • American Occupational Therapy Association
  • American Speech Language Hearing Association
  • National Society of Genetic Counselors
  • National Coalition for Health Professional Education in Genetics HRSA
  • Parent Project Muscular Dystrophy
  • Muscular Dystrophy Association
  • Cure CMD
  • SMA Foundation
  • Cure SMA

The chair of the 2009 Task Force was Katherine Mathews and the director of the Task Force was Holly Peay.


For more information about the National Task Force for the Early Identification of Childhood Neuromuscular Disorders, email coordinator@parentprojectmd.org.